It's almost 5 AM. I went to sleep around 12:30. I was woken by one of my cats licking a plastic bag. I don't know why he does this, but it drives me up the wall. I moved what he was licking, so he found something else. It sounds terribly cute, and it is, until it's 4 AM.
I'm trying to figure if this behavior is related to hunger or a food desire, so I offered him some wet food (he's very very picky about wet food, and won't eat any more than 10 minutes old). The opening of the can, of course, woke my other cats.
So here I am, mixing food for one cat, while another watches me suspiciously (this is not at all our routine) and then the meowing on the other side of the door starts up. The new boys were up as well.
For the last few days, Mickey has been reasonably comfortable with hand and arm contact, at least with me (my partner isn't spending enough time with them to form a good bond, so his progress will be slower) but Gizmo hasn't wanted anything to do with contact, only lots of kitty kisses (slowly blinked eyes). I haven't been pushing his comfort level too much, though I do offer him appendages for sniffing occasionally, lots of toys and food, and talk to him a lot.
Tonight, Gizmo let me love all over him. He was just as thrilled for contact as Mickey had been when he finally opened up, and they were both super affectionate, At the same time. That's exactly what I've been missing in my established cat dynamic; cats that get along well enough that I can pet them at the same time.
They also both really want to get out of the room and explore the rest of the house. The idea was to wait until both of my existing cats had gone in the room a few times, at least, and that's still the plan, but my cats aren't terribly interested in going in..
Scooter went in this morning, and just sort of walked around pretending there weren't other cats in the room, and that he owned the place. The whole time he was there, mickey had his nose up Scooter's butt, and followed him around relentlessly. Scooter, for his part, took it quite well, the whole thing was very civil, and when he started hanging around the door, I opened it for him, and he left.
Exactly the intro I was hoping for!
Gin, on the other hand, is offended that I'm petting another kitty, even though I am by no means ignoring her in the process. Gin had always been an odd duck; I got her from the shelter as a kitten, and she came home to an apartment full of 6 month old black lab and an asshole human I've since gotten rid of. She didn't get the positive start in life I wish I could have given her.
She's never been much of one for other cats, though I think this has more to do with them not matching her personality well enough to have a friend out of it. She's not actually aggressive and she hasn't claimed a person as territory as one of my other cats did (Omocha, unfortunately, needed to be re-homed; she was absolutely a one-cat-house cat, and we just couldn't give her that, so I found her a family that could). Indeed, it seems as though Gin just doesn't LIKE who we picked as her friend.
I'm hoping that Mickey and Gizmo will solve this problem, by having different enough personalities not just from each other, but from my established cats, to fill any personality gap we may have. Cats have activities that they like to share with friends, just like we humans do, and similar to humans, it's tough to find another cat who likes all the same things. Just like humans, the more friends are available, the more likely they will have overlapping interests.
So far, everything is looking good, it's just a matter of time.
Showing posts with label friendship. Show all posts
Showing posts with label friendship. Show all posts
Thursday, July 30, 2015
Thursday, July 16, 2015
What's good for me...
I'm trying to talk boyfriendicus in to letting me add 2 more cats to my home (an adorable bonded pair of 8-year-old neutered male Siamese mix, just like one of my existing cats but with darker coloring).
He's not as thrilled at the prospect as I am, even though he doesn't do the labor of love for them; feeding, water, boxes, the bulk of attention and "training", and the majority of constructing toys and cat furniture, that's my job, and that's totally fine with me. They are, after all, my cats, and I am, after all, home a lot more often. My cats fill the social void in my life, especially when I'm not feeling well enough to be social with people. They are my companions, and I don't mind doing things for them, although I do sometimes have difficulty finding the drive to do said tasks in a timely manor.
I've been reading a lot lately about how having multiple cats actually makes said cats interact more pleasantly, and that, I think, is something my existing cats would like. As it stands, I have one very active cat, Scooter, a 2 year-old Siamese mix, and on not-so-active cat, a 7 year-old domestic short-hair named Gin (pronounced ghii-n, which is Japanese for "silver") who's communication skills are.. well.. not the best. Giving them a pair of cats to befriend increases the chance that both existing cats will find something to like, and should greatly reduce the existing friction. And that's what I want.
Yes, one additional cat can serve that function as well, but 2 give more of a buffer. When resources are plentiful, cats do best in groups. Goes straight against everything we've been told, no? But there it is. Cats are very intelligent, and very social, and just like people, they want friends to share activities with. If there are only 2 cats, and they don't have the same personality and interests, there will be friction as they continually ask each other for things they won't get. Just like with human friends, though, even 2 very similar cats won't like all the same activities. It's rare to find a human who likes skydiving, playing classical piano, going to clubs, and, say, cooking... all in the same person. Similarly, it's difficult to find a cat who will like everything the existing cats like, especially since the existing cats are so different in personality.
I've explained the logic, but it's so counter to everything we grow up hearing and believing that it's not going well on the convincing end. His concerns seem to focus around the litter boxes, and the need to change them more often. I don't see this being the case, as I strictly follow the "one box per cat plus one" rule, though I would probably do "one per cat plus one per 2" so I would have 6, not 5. Since I use shredded paper from craigslist for litter, this wouldn't cost any more than it does now, though the compost pile will grow more quickly. With the right number of boxes, the frequency of changes shouldn't be a concern, nor should it be significantly different than now.
The food cost is another issue he's citing. And I'll give him that. Canned food is a bit pricey, but I buy it in bulk every 6 months when I get my school money, so that when I'm broke, it's OK; I will still have food for them. The cost of food would double from $200/6mths to ~$400/6mths. Most people pay that in litter, alone. The place I buy canned food has the best prices I've found for a quality selection (~$0.30/can), and they do a bulk-order discount, so for every 10 flats (box of 24 cans) I get one free flat. I'd be buying 30 flats every 6 months, so I'd get 3 flats free. We have a basement we never use for anything, so I have no major concerns over where to put it all, and the saved effort of going to get it when I run out is more than worth the effort of buying it all at once.
As for the time and amusement needs, that's the joy of multiple cats; they spend time with each other, and it reduces the interaction need with humans. This isn't to say I don't care to spend a bunch of time with the cats, especially 4 of them, but the type of interaction would be different. More companionship, less guided play, because they can play together a lot better than they can play with a human. My cats currently have a bunch of pent-up energy that we can't properly discharge; Scooter has a boatload of energy, and assumes that all toys are for him all the time, which prevents my more relaxed cat from feeling comfortable playing. 2 more cats could even this out nicely, and allow me special time with the first cat I adopted on my own, Gin.
He seems to think that older cats are not as good as the younger ones, but as it turns out, they just take longer to acclimate. Indeed, older cats are likely to be better in the long run, because they were ripped from a happy home through no fault of their own, and just want a new friend or two. These two would be roughly the same age as Gin, so they should have the same level of maturity,if not the same level of activity. That's a good setup, and sure you could do it with just one cat, but it doesn't give the same friendship opportunities for the cats, especially when they aren't the same personality.
The current dynamic in the house isn't the greatest. Boyfriendicus doesn't seem too interested in learning (on his own) how to be friends with my cats, although after I explained how just being in the room with him was a sign from Gin that she was ready to be his friend, he took to acknowledging her presence and giving her kitty kisses (slowly-blinked eyes). This means, to me, that the whole situation could very easily change, and for the better, with just a bit of work from the two of us, and that translates DIRECTLY to cohesion with a new set of cats, as well. Every trick he learns to interact with Gin, who is really a very sweet kitty with a rough history and trust issues, is one more trick to apply to new cats.
Every effort given to the cats we have now is an effort that will have much weight when the existing cats show the new ones the ropes "see that big human? The one who who isn't home all day? Yeah, he's completely clueless, but he's trying, go give him some love". Cats can communicate complex ideas, just like we can. We just don't understand them, and so assume it doesn't happen. This, I think, is the point above all others that should encourage friendship; if you have it with one, you are more likely to have it with the others. They understand effort, and they appreciate it.
He's concerned that doubling the cat population in the house will lead to new problems, but I've seen the way Gin and Scooter interact with the neighborhood cats from their outdoor 8x9x9 enclosure. They want to be social, but on their own terms. That is to say, they want to be social, just not with each other, because their needs aren't being properly met with the current setup. If Scooter could get his play out with other active cats, he could leave Gin in peace, and she might actually like him. She tries really hard to like him now, and even grooms him occasionally, she just can't be his best friend right now because he pesters her for play.
My conundrum is this; I really, honestly, think 2 cats, especially an older but active pair which are significantly less likely to be adopted (both because they are older, and because there are two which cannot be separated), would be a good fit for us. Boyfriendicus brought up the idea of getting another cat, so it's clear that he enjoys them, and I've always had cats, and view pats as a "the more the merrier" situation. Their behaviors and interactions are fascinating, and I feel good when I make them feel good.
I want to convince him that it's our best best for a happy home, but at the same time, I respect his opinion, and he shares this home, so it impacts him, as well. The last time I went to the shelter to get a cat, I tried to convince him to get 2, and he said no. We should have gotten 2 then, and I probably wouldn't be looking now.
I did tell him if we got 2 more, I wouldn't want more until one of them died, and it's true; 4 is all I want, it's my kitty limit. I just want there to be at least one cat available most of the time for affection, and I want them all happy. Those aren't such bad goals, especially for a household with no intention of having kids.
He's not as thrilled at the prospect as I am, even though he doesn't do the labor of love for them; feeding, water, boxes, the bulk of attention and "training", and the majority of constructing toys and cat furniture, that's my job, and that's totally fine with me. They are, after all, my cats, and I am, after all, home a lot more often. My cats fill the social void in my life, especially when I'm not feeling well enough to be social with people. They are my companions, and I don't mind doing things for them, although I do sometimes have difficulty finding the drive to do said tasks in a timely manor.
I've been reading a lot lately about how having multiple cats actually makes said cats interact more pleasantly, and that, I think, is something my existing cats would like. As it stands, I have one very active cat, Scooter, a 2 year-old Siamese mix, and on not-so-active cat, a 7 year-old domestic short-hair named Gin (pronounced ghii-n, which is Japanese for "silver") who's communication skills are.. well.. not the best. Giving them a pair of cats to befriend increases the chance that both existing cats will find something to like, and should greatly reduce the existing friction. And that's what I want.
Yes, one additional cat can serve that function as well, but 2 give more of a buffer. When resources are plentiful, cats do best in groups. Goes straight against everything we've been told, no? But there it is. Cats are very intelligent, and very social, and just like people, they want friends to share activities with. If there are only 2 cats, and they don't have the same personality and interests, there will be friction as they continually ask each other for things they won't get. Just like with human friends, though, even 2 very similar cats won't like all the same activities. It's rare to find a human who likes skydiving, playing classical piano, going to clubs, and, say, cooking... all in the same person. Similarly, it's difficult to find a cat who will like everything the existing cats like, especially since the existing cats are so different in personality.
I've explained the logic, but it's so counter to everything we grow up hearing and believing that it's not going well on the convincing end. His concerns seem to focus around the litter boxes, and the need to change them more often. I don't see this being the case, as I strictly follow the "one box per cat plus one" rule, though I would probably do "one per cat plus one per 2" so I would have 6, not 5. Since I use shredded paper from craigslist for litter, this wouldn't cost any more than it does now, though the compost pile will grow more quickly. With the right number of boxes, the frequency of changes shouldn't be a concern, nor should it be significantly different than now.
The food cost is another issue he's citing. And I'll give him that. Canned food is a bit pricey, but I buy it in bulk every 6 months when I get my school money, so that when I'm broke, it's OK; I will still have food for them. The cost of food would double from $200/6mths to ~$400/6mths. Most people pay that in litter, alone. The place I buy canned food has the best prices I've found for a quality selection (~$0.30/can), and they do a bulk-order discount, so for every 10 flats (box of 24 cans) I get one free flat. I'd be buying 30 flats every 6 months, so I'd get 3 flats free. We have a basement we never use for anything, so I have no major concerns over where to put it all, and the saved effort of going to get it when I run out is more than worth the effort of buying it all at once.
As for the time and amusement needs, that's the joy of multiple cats; they spend time with each other, and it reduces the interaction need with humans. This isn't to say I don't care to spend a bunch of time with the cats, especially 4 of them, but the type of interaction would be different. More companionship, less guided play, because they can play together a lot better than they can play with a human. My cats currently have a bunch of pent-up energy that we can't properly discharge; Scooter has a boatload of energy, and assumes that all toys are for him all the time, which prevents my more relaxed cat from feeling comfortable playing. 2 more cats could even this out nicely, and allow me special time with the first cat I adopted on my own, Gin.
He seems to think that older cats are not as good as the younger ones, but as it turns out, they just take longer to acclimate. Indeed, older cats are likely to be better in the long run, because they were ripped from a happy home through no fault of their own, and just want a new friend or two. These two would be roughly the same age as Gin, so they should have the same level of maturity,if not the same level of activity. That's a good setup, and sure you could do it with just one cat, but it doesn't give the same friendship opportunities for the cats, especially when they aren't the same personality.
The current dynamic in the house isn't the greatest. Boyfriendicus doesn't seem too interested in learning (on his own) how to be friends with my cats, although after I explained how just being in the room with him was a sign from Gin that she was ready to be his friend, he took to acknowledging her presence and giving her kitty kisses (slowly-blinked eyes). This means, to me, that the whole situation could very easily change, and for the better, with just a bit of work from the two of us, and that translates DIRECTLY to cohesion with a new set of cats, as well. Every trick he learns to interact with Gin, who is really a very sweet kitty with a rough history and trust issues, is one more trick to apply to new cats.
Every effort given to the cats we have now is an effort that will have much weight when the existing cats show the new ones the ropes "see that big human? The one who who isn't home all day? Yeah, he's completely clueless, but he's trying, go give him some love". Cats can communicate complex ideas, just like we can. We just don't understand them, and so assume it doesn't happen. This, I think, is the point above all others that should encourage friendship; if you have it with one, you are more likely to have it with the others. They understand effort, and they appreciate it.
He's concerned that doubling the cat population in the house will lead to new problems, but I've seen the way Gin and Scooter interact with the neighborhood cats from their outdoor 8x9x9 enclosure. They want to be social, but on their own terms. That is to say, they want to be social, just not with each other, because their needs aren't being properly met with the current setup. If Scooter could get his play out with other active cats, he could leave Gin in peace, and she might actually like him. She tries really hard to like him now, and even grooms him occasionally, she just can't be his best friend right now because he pesters her for play.
My conundrum is this; I really, honestly, think 2 cats, especially an older but active pair which are significantly less likely to be adopted (both because they are older, and because there are two which cannot be separated), would be a good fit for us. Boyfriendicus brought up the idea of getting another cat, so it's clear that he enjoys them, and I've always had cats, and view pats as a "the more the merrier" situation. Their behaviors and interactions are fascinating, and I feel good when I make them feel good.
I want to convince him that it's our best best for a happy home, but at the same time, I respect his opinion, and he shares this home, so it impacts him, as well. The last time I went to the shelter to get a cat, I tried to convince him to get 2, and he said no. We should have gotten 2 then, and I probably wouldn't be looking now.
I did tell him if we got 2 more, I wouldn't want more until one of them died, and it's true; 4 is all I want, it's my kitty limit. I just want there to be at least one cat available most of the time for affection, and I want them all happy. Those aren't such bad goals, especially for a household with no intention of having kids.
Labels:
adoption,
budget,
cats,
comfort,
companionship,
decisions,
friendship,
love,
pets,
stress,
support
Saturday, June 27, 2015
A letter to loved ones
This will be very long. It
needs to be long. This is an open letter to everyone in my life, both
those with and those without chronic pain. There is just so much that
sufferers don't want to or cannot put to words. We cope largely in
silence, sometimes because we don't have the words to say what needs
to be said, sometimes because we realize that our needs are enough to
discourage connections with those we care about. Whatever the
reasoning, there are things that need to be said, and this is to
address some of those issues in my life.
Dear Loved Ones,
Most people, whether they
are aware of it or not, know someone who suffers with chronic pain.
Despite this, most people don't have any idea what that means,
because unlike obvious illnesses or injuries, chronic pain tends to
be invisible. Facial expression and body language aren't always
reliable indicators, because many with chronic pain don't want their
suffering to be visible, and work hard to suppress those signs. You
can't see a headache, you can't see back pain, you can't see what we
feel, and that sucks. It sucks because it's easy to ignore or dismiss
something you can't see, but we still feel it. It sucks because you
never know when we hurt unless we tell you or let you see our pain,
and we don't always want to be seen as complainers.
So perhaps it would be
helpful to share some information with you, the people who might care
about me. I hope this will be as useful to you as to me, since that's
the whole point. It can be difficult figuring out how to deal with
someone like me, who has chronic pain, just as it can be difficult to
admit extensive needs. I share this out of love and care, not to
induce shame or guilt; I want this to make our interactions more
peaceful and pleasant for both of us.
First, and perhaps most
importantly, please understand that I don't mean to be negative. I
don't mean to be short with you, or seem frustrated or angry, and I
do my best to avoid taking anything out on you when it's not your
fault. When I'm in pain, though, it's very difficult to be the person
I want to be. I try very hard to give you the respect and
appreciation you deserve, but sometimes it's just difficult for me to
be as patient as I'd like, sometimes it's tough for me to see the
silver lining, and it's sometimes very difficult to ignore the
frustrations in life. Think of the last time you had a really bad
headache. Now imagine it hasn't gone away in years. That's really
frustrating, and that's my life, in addition to all the normal
stresses like school, relationships, and money. I'm just like you,
just with pain.
Repeat the above with back
pain, leg pain, arm pain, stomach pain; any kind of pain. This
applies to all chronic hurt. Many sufferers, myself included, have
more than one kind of pain.
I have bad days, just like
you do, it just might happen a bit more often for me. My body is a
prison, and I'm serving a life sentence for a crime I don't remember
committing. I deal with it as best I can, and I cope, but it's a
struggle to stay positive, knowing that this will probably never
change; most chronic pain is never cured, the best we can usually
hope for is symptom reduction, and even that is a dream to many. This
is my life, and I make as much of it as I can, but I can't do all the
things you take for granted, and that fact is painfully obvious to
me. Once in a while, I like to feel sorry for myself, and wallow in
self-pity for a time. I think I've earned that, so if I seem
resistant to cheering, leave me be.
Depression is a common
side-effect of chronic pain. Think about it for a second, it makes
complete sense; you'd be depressed too, if you were stuck in a body
that didn't work properly and constantly overloaded your senses with
painful stimuli. But please, don't mistake stress or depression as
the cause of my problems; my doctors and I have already explored that
possibility ad nauseam. It's not about not trying hard enough, it's
not because I'm unhappy, and my pain is not psychosomatic. I don't
know why I have this pain, but I do know it's not something I can
just cheer myself out of. I've tried. A lot.
I know I seem unreliable.
I am unreliable. Even to myself. I can't count on my body to be able
to do things when I want or need to, and that translates to you not
being able to count on me. I'm sorry; I don't want it to be like
that, and I try really hard to ignore my limitations whenever I can.
I don't want to be flaky. I make commitments because I really want to
be able to keep them, and I frequently disappoint myself when I
can't. If you think my behavior is frustrating, try being me. It's so
much worse from the inside. I'm not offering this as an excuse, I
just want you to know that I hate it, too.
Please try not to get
discouraged when I have to cancel a previous commitment at the last
second; believe me, I want to go more than you can imagine, and there
have been many times I've gone knowing full well I shouldn't.
Instead, I would really appreciate it if you would try to work with
me to find a compromise that gets me out and in your company, but
still doesn't force me to spend that time completely miserable. If
it's something that can be rescheduled, let's do that! If it can't be
rescheduled, perhaps I just need to know that I can get a ride to a
safe and quiet place if I need one, judgment-free. Maybe all I need
is a place I can retreat and recuperate while I'm there, where I know
I will be left alone. If I still say no, please don't take it
personally. If you want to be angry, please don't be angry with me,
be angry at my pain; it showed up unbidden, I did not ask for it. You
can hate my pain -I certainly do. You can hate it, you can be angry
with it, you can want to stab it in the face and rip off it's gonads,
but remember; my pain is not ME, I am not my pain. I'm still the same
me, stuck inside a failing body, and it's not my fault. I wouldn't
have chosen this, so please, I beg you, remember that.
If I tell you I can't do
something, and I've still said no after you've offered to reschedule
or accommodate me, it might be because it's an activity that makes my
condition worse. There are many days when I can't bring myself to
interact with people, because I have a short fuse and a lot of pain.
There are many days when getting out of bed isn't an option, even
though I look fine from where you are. Getting out, getting my mind
off my troubles, these things don't make me feel better, and
sometimes they make me feel worse. I know it's hard to understand,
but I've lived with this pain long enough to know which activities I
can or cannot do at certain times. Sometimes I do them anyway,
because losing out on my life really sucks, but that doesn't mean I'm
always up for putting myself through that. When you do too much
activity, you might get sore muscles, or be tired from exertion. When
I do too much activity, it can really aggravate my pain. Increasing
my heart rate sometimes makes my head pound, including a slow climb
of a flight of stairs, an activity you probably take completely for
granted. I usually know what type of pain I have on a given day, and
what helps or makes it worse.
I can't predict from day
to day how I will feel. Usually I have a good idea on the
minute-to-minute, but pain can rear it's head any time, any place,
with no warning. The intensity also varies considerably, and although
I might be able to do something one day, that doesn't mean I'll be
able to do it today. Just because I did something earlier in the day
doesn't mean I can right now. Saying something like "but you did
it before" or "you do -something similar- all the time!"
hurts me. I wouldn't say no if I could do it. Some activities make my
pain considerably worse, even if it doesn't start right away. I might
be good for a hike, but hurt for a week afterwards. I might go to a
bar for an hour, and have a headache for 2 days because of the noise.
Delayed pain is part of my life, and sometimes, doing something I
really want to do means I can't do anything else for a while.
Many people with chronic
pain experience variations in the quality and location of pain. I
know quality of pain seems like a ridiculous concept, but the truth
is, our pain isn't just pain. Many of us don't know what kind of pain
we will have from one day to the next; shooting, burning, aching,
throbbing. We don't always know where we will find our pain from one
day to the next. If we've been afflicted long enough, we know how to
identify the types of pain we experience, what causes them, and what
relieves them, if anything. We've learned to identify our symptoms so
that we can cope with them. Sometimes the explanations for behavior
will include symptoms you've never heard of before from the sufferer;
this doesn't mean it's not true. Just keep in mind that we are
completely unpredictable, even to ourselves. We don't know how this
is going to play out any more than you do, but we need to be taken
seriously. We don't have great words to describe this experience, so
we do the best we can with limited vocabulary.
So all that said, I'd like
to ask you a favor; rather than ask me if I -want- to do something (I
desperately do want to, honestly), ask me if I am able. Even if I
look totally fine, please ask if I'm able. I would happily field that
question a million times when I feel perfectly OK, just to make sure
you also ask it when I'm not feeling well. I know you can't really
tell when I'm hurting, so don't worry about offending me -In fact,
I've been working for years on not showing my pain to the public;
that you can't usually tell means I've succeeded in looking normal.
The reason I want you to ask is that, if you ask every time, instead
of saying “let's go do ---”, I get to actually say yes, I am able
to do that today. If you don't ask if I'm able, but only if I'm
interested, saying no means I don't -want- to do things with you,
which is not at all the case. I hate saying no to activities, I just
don't get enough opportunity to say yes. Help me say yes to you; I
promise it will make us both feel better.
I want to spend time with
the people I care about, just like you do, and I get lonely, too. I
get lonely when my pain keeps me home, and everyone else is out
having a good time. I put on a brave face, sometimes, and deal with
my condition, just to be around you. I may appear to come and go, I
might lose track of conversation, and I might not have much to say,
but that doesn't mean I don't appreciate your company, and it
certainly doesn't mean I don't want to listen. Because of my
limitations, I don't have an expansive social circle, but I deeply
value everyone I've chosen to share my life with, and I miss you when
my condition keeps me from being in contact.
Having limitations doesn't necessarily mean that I can't do anything at all, and I really take pride in the things that I can still do without help. Certainly, it might take more time for me to do things, and I might have issues finding motivation sometimes, but I am very proud that I can still take care of some things myself. I appreciate you asking me if I would like help, but please do not simply do things for me if I have mentioned wanting to do them. I select projects for myself based on my own capabilities, and doing them for me denies me that satisfaction. If you would like to help, ask me what you can do, I'd usually be glad to have the help. I may say no, and that's OK, too, it just means I'd rather do it myself, because I have it all planned out already.
Having limitations doesn't necessarily mean that I can't do anything at all, and I really take pride in the things that I can still do without help. Certainly, it might take more time for me to do things, and I might have issues finding motivation sometimes, but I am very proud that I can still take care of some things myself. I appreciate you asking me if I would like help, but please do not simply do things for me if I have mentioned wanting to do them. I select projects for myself based on my own capabilities, and doing them for me denies me that satisfaction. If you would like to help, ask me what you can do, I'd usually be glad to have the help. I may say no, and that's OK, too, it just means I'd rather do it myself, because I have it all planned out already.
Please understand that
being happy doesn't mean I'm healthy or pain-free. I work very hard
to keep myself happy despite my condition, even when it's at it's
worst. I smile and laugh even when I'm in agony. When you get sick,
or hurt yourself, it might be all you can think about, and you might
feel miserable. I've felt like this for so long that I just can't be
down about it all the time. If I seem happy, I am. Please remember
that these two facets of my life are not connected anymore. Pain is
my constant companion, but that doesn't mean it gets to decide how I
live my life. I ask that you not assume that being in good spirits
means I feel fine. It doesn't, I still hurt, even when I'm in a good
mood.
I know that you want to
help me feel better, but please don't suggest a treatment or cure to
me, unless you already know what I've tried. I know you mean well,
and I do so want to recover, but I hear about "cures" and
pain relief techniques all the time from other people who also want
to help me feel better. Not only that, but I spend a considerable
amount of time researching my conditions, looking for anything that
has promise of helping. If you've heard of it, I probably have, too,
and chances are, I've also tried it. I'm desperate for relief. There
is a huge network, both on and offline, of people just like me, with
conditions just like mine, and we share our treatment information
with others. If that "cure" you saw on Facebook, yahoo
answers, or some blog was really a cure, we would know about it by
now.
Some of the suggestions
I've gotten from people have actually made my pain worse; some of the
medications I've been recommended have caused side effects that
threaten my quality of life; some of the treatments I've learned
about seem promising, but they aren't covered by insurance. These
factors all lead to my condition being worse, not better. Obviously,
if you've come across some new research about my conditions, and you
think I may not have seen it, by all means, pass it on to me, just
please don't get my hopes up with an overly-optimistic title for your
message. Cure is a very strong word, and my conditions currently
don't have one, despite oodles of research into the mechanisms.
"Cure" gets my hopes up, and the letdown is really harsh.
My doctors and I have a treatment plan, but I may talk to them about
what you share with me, just the way I talk to them about research I
find on my own.
Please don't ask me how
I'm feeling, unless you really want to know. If I miss a commitment
one day, don't ask me the next if I'm feeling better, because the
answer is always going to be “no”. That's just how it works for
me. Even if I feel better, I still hurt, and I don't like lying to
you so that you don't feel sorry for me. I know it's hard for you not
to ask, and I appreciate that you care enough to want to know, but it
just puts us both in an uncomfortable position, and I'd like to avoid
that. Just know that if I'm there, I'm well enough, and leave it at
that.
I want you to know that
I'm not distant because I want to be; a lot of times, I can feel the
cognitive changes that take place when my pain sets in. I can feel my
brain slow down. I can feel my motor control deteriorate. I can feel
my distance, and I hate it. I forget things, even mid-conversation, I
lose words, whole segments of what was just discussed, and I even,
frequently, experience a delayed self-awareness (as in, I don't
always realize what I've done or said until after it's been done or
said). This whole thing is really scary for me, so sometimes I just
keep quiet and listen. This is especially true when there is a lot of
input to keep track of, such as with a large number of people. My
pain slows down my processing of what's going on around me, often to
the point where I couldn't contribute if I wanted to.
I also want you to know
that I don't distance myself physically because I want to. I
frequently spend half or more of the day alone, just so that I can
get things done. I forget what I'm doing halfway through a task, or
something distracts me, and whatever I was doing vanishes from my
consciousness. If I've chosen to be alone, please just leave me
alone. Please don't pop your head in to ask if I need anything, or
want anything, or want to do anything. I know you mean well, I really
do, but it's aggravating, sometimes quite startling, and frequently
makes me lose track. Please rest assured that if I need anything, I
will ask. If I spend 12 hours holed up by myself, it's because that's
what I need to do. I may seem fine when you come to check on me, I
may even be reading or playing a game, but I'm not fine, or I
wouldn't be alone. When my pain is bad, I can deal with solo
activities like movies, books, or games, because I can put them down
when I need a break or start to hurt too much; doing these activities
does not mean I'm fine. I would never get to do anything if that was
the case. Having to explain my actions all the time is -humiliating-.
I don't want to have to defend my coping strategies, so please don't
make me.
I don't distance myself physically because I'm a china doll, but sometimes I do get sensitive to touch, just like I get sensitive to light, sound, motion, and smells. If you'd like a hug, or think I would, just ask, or do the arms-out thing, and just don't be too terribly offended if I don't accept it, or say no. I may go through spans where I'm not terribly interested in much physical contact with anyone, and that may be because of my mood, my pain, or any number of other factors, and that's just part of who I am. It has nothing to do with a desire to be loved or appreciated, it has nothing to do with my love or appreciation for you, it's just how I am.
I don't distance myself physically because I'm a china doll, but sometimes I do get sensitive to touch, just like I get sensitive to light, sound, motion, and smells. If you'd like a hug, or think I would, just ask, or do the arms-out thing, and just don't be too terribly offended if I don't accept it, or say no. I may go through spans where I'm not terribly interested in much physical contact with anyone, and that may be because of my mood, my pain, or any number of other factors, and that's just part of who I am. It has nothing to do with a desire to be loved or appreciated, it has nothing to do with my love or appreciation for you, it's just how I am.
If I
don't get anything productive accomplished, such is life. Have you
ever looked at a sink full of dirty dishes, knowing they need to be
done, and just cried because you couldn't get yourself do it? I have,
both due to pain and to depression on bad days, and it sucks. I'm not
trying to be lazy, and I'm not trying to have no responsibility,
there are just days, even times of day, when getting anything
accomplished is pure fantasy. I feel guilty as hell about this, because I have all of my appendages and I'm not paralyzed;
there's no outward reason to be unproductive. I'm trying to accept
that I can't do everything I think I should, at least not on a
schedule, but it's really hard to avoid feeling guilty. Just know
that I do what I can, when I can; not being able to do
things when others want them done drives me to do things when I have
the ability.
I know this is a rough
situation, and I know I'm asking you for a lot, but I count on the
people in my life who are able, and I do my best to reciprocate any
way I can. It's far from ideal, but this is the best I can do, even
though I want to do so much more. I appreciate everything you do for
me, even when I find it upsetting, because I know you can't possibly
understand what I need if I don't tell you.
Thank you for taking the
time to read this. I appreciate it more than you know. I hope this
will help resolve some of the issues we may have, and strengthen our
relationship even if we have no issues.
--------------------------A
note on use of this letter--------------------------
If you would like to
reproduce this letter in a publicly available location (facebook,
your blog or website, forums, etc.), please do not alter it in any
way, and acknowledge the source (I cope, therefore I am) with a link.
I spent a lot of time writing this out and editing it for people like
me who just need to share through writing, and the content of it was
specifically selected to be some of the harder things to discuss
honestly and bluntly with loved ones. I know my views may not be
entirely applicable to everyone's situation, however as a base for
those people who need it, the difficult topics are intended as an
edit-able starting point.
If you would like to adapt
this letter for personal use, without the intention of posting
anywhere public, feel free to do so without acknowledgment. I want
this document to help make life better for someone out there who,
like me, just can't say the things that need to be said to have a
good life.
Labels:
Chronic pain,
family,
friendship,
headache,
help,
life,
love,
relationship,
suffering,
support
Subscribe to:
Posts (Atom)